Sunday, November 7, 2010

More New Video...

Here is a video I took the other night at a family fun event on campus.  We were waiting in line to have the girl's faces painted, and she was obviously excited (trigger #1).   Anyway, just another example of the complex nature it can take on when she is standing.  FYI, no one really took much notice of her, especially with the other kids running about.  

3 comments:

  1. Hi Amanda,

    My daughter was just diagnosed with this. She is six and a half and looks just like your daughter. I never had a name for it or knew anyone else like her. It happens when she is excited or anxious about something. We are going down to Johns Hopkins for the neuropsych and genetic testing the end of this month. It is very painful for me to watch her do it. I want to get over that part because I know that is my issue. Thank you for creating this informational blog. Have you tried behavior therapy as the John Hopkins website mentions that it can be helpful? I know there are a lot of unknowns now. But, I would love to follow you. And, I would love for some day to have an answer as to 'why' this is occuring. Thank you!
    Lin

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  2. The video of your daughter just brought tears to our eyes and an answer to a 4 1/2 year mystery. Our little girl was born prematurely and has had issues ever since. She was diagnosed with Sensory Processing Disorder, but we knew there was more. No one could tell us why she did her hand movements and facial contortions. Watching your little girl in front of the TV moving her mouth and hands was like watching our little girl. She went for a screening today and stereotypy was mentioned. It was then that we came home and starting looking more into it. Thanks for this blog and for sharing your journey with us. If you're on Facebook, I'd love to connect and keep in touch.

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  3. I'm releived to see there are more people than me that have stereotypies in this world. I thought I was the only one who had it. i am 13 years old and finally i have found out there are people like me.

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